Sometimes when I feel empowered by a string of relatively successful Facebook posts, I’ll attempt a showy essay-length entry about something that means very much to me. Usually, they’re TLDR and poorly received but also too conspicuous to take down.
Between my panicked page refreshing, I quickly run through a series of emotions. First I’m sad that no one appreciates my views about how TOMS is totally not helping children in Africa. Then I’m annoyed. Seriously, what kind of friends don’t care about how TOMS is totally not helping children in Africa?? Then I enter the denial stage and convince myself that no one saw the post, which explains the lack of commentary about the poor children in Africa. This placates me until I sign in the next time and see the obscenely passionate entry with a fresh pair of eyes, which of course makes it more embarrassing. Remember that time you tried to be a hero on Facebook? Yeah, can you not?
Although I don’t think that’s the real takeaway. I don’t have to “not” entirely. It’s just a matter of correcting the venue. Today I wrote a post about marijuana reform and how it affects my family, and I believe in it so deeply. However, I’m moving it here so that peoples’ newsfeeds can go back to being a steady stream of Buzzfeed and Thought Catalog “articles” like God intended. And then all was right with the world.
The Realm of Caring produces a marijuana extract high in CBD that has been shown to help epilepsy patients. It has been featured in these two CNN documentaries about marijuana: Weed and Weed 2.
Last year, the non-profit came to California but was closed three weeks ago because it was in violation of the very arbitrary Proposition D. Read the story here. As one of the 2,000 families on the wait list for the cannabis-based medication, my family was asked to share our story and our words of advocacy for the organization and for marijuana legislation reform. Here’s what we submitted:
Mindy was diagnosed with epilepsy at nine months old . She suffers from clonic-tonic and as well as focal seizures, and in the past few years has been having chains of seizures so violent and successive that she is in the emergency room monthly. We have worked with her neurologist for her entire life to find the cocktail of approved epilepsy medication to control her seizures, but nothing has prevailed. Currently, she takes three different medications twice daily, and while her seizures are still not under control, the side effects are palpable in every aspect of her life. Her social, academic, emotional, and psychological well-being has suffered as a result of spending a lifetime with the illness and these medications.
In the past year, the narratives of patients who have been helped by high-CBD cannabis oils have brought hope to the epilepsy community. This hope has cut through the desperation our family has always felt regarding Mindy’s condition, and it should not be taken away from us now. Epilepsy can be such a misunderstood and isolating disease, and epilepsy centers like RoC California that are educating families and providing them with a potential solution to their children’s suffering need to remain open. The CBD oils are something every family must have the opportunity to try – just as every family should have the opportunity to save their sick child, to offer her a chance at a full and healthy life.
I share this because whatever your reason for wanting marijuana legislation reform – to unwind from a hard day without looking over your shoulder, to extra-enjoy some new music, to make a buck, or because your glaucoma is just that bad – our politicians need to see that the movement is substantial and that we should be skeptical about how we’ve been talking about this War on Drugs. So I hope that you’ll stand up for the decriminalization and legalization of marijuana whenever you have a chance – in your use, in conversation, and in the polls. Because it’s a good, good fight.